{"id":1868,"date":"2021-03-04T14:05:29","date_gmt":"2021-03-04T14:05:29","guid":{"rendered":"https:\/\/web22297.web16.mynet.at\/?page_id=1868"},"modified":"2024-09-26T12:33:29","modified_gmt":"2024-09-26T11:33:29","slug":"designation-en-tant-que-centre-associe-et-en-tant-que-structure-de-prise-en-charge","status":"publish","type":"page","link":"https:\/\/dev.inbornerrors.ch\/fr\/professionnels\/designation-en-tant-que-centre-associe-et-en-tant-que-structure-de-prise-en-charge\/","title":{"rendered":"D\u00e9signation en tant que Centre Associ\u00e9 et en tant que Structure de prise en charge"},"content":{"rendered":"<p>Dans le cadre de ce projet pilote, le Groupe de travail suisse pour les erreurs inn\u00e9es du m\u00e9tabolisme (SGIEM) et la <a href=\"https:\/\/www.kosekschweiz.ch\/\">kosek<\/a> ont activement collabor\u00e9 \u00e0 la mise en place d&rsquo;un r\u00e9seau national de prise en charge pour les maladies h\u00e9r\u00e9ditaires m\u00e9taboliques.<\/p>\n<p>Au terme de ce projet, la kosek a reconnu en novembre 2021 quatre Centres de R\u00e9f\u00e9rence pour les maladies m\u00e9taboliques rares (dont un pour les porphyries).<\/p>\n<p><a href=\"https:\/\/www.kosekschweiz.ch\/fr\/renseignements\/r%C3%A9seaux-et-centres-de-r%C3%A9f%C3%A9rence\">https:\/\/www.kosekschweiz.ch\/fr\/renseignements\/r%C3%A9seaux-et-centres-de-r%C3%A9f%C3%A9rence<\/a><\/p>\n<h2>Structure du r\u00e9seau<\/h2>\n<p>Tous les documents en lien avec la d\u00e9signation par le SGIEM peuvent \u00eatre t\u00e9l\u00e9charg\u00e9s ci-dessous:<\/p>\n<ul>\n<li>Lettre d&rsquo;accompagnement du SGIEM (en\u00a0<a href=\"https:\/\/www.kosekschweiz.ch\/download_file\/view\/198\/434\" target=\"_blank\" rel=\"noopener noreferrer\">fran\u00e7ais\u00a0<\/a>et en\u00a0<a href=\"https:\/\/www.kosekschweiz.ch\/download_file\/view\/197\/434\" target=\"_blank\" rel=\"noopener noreferrer\">allemand<\/a>)<\/li>\n<li><a href=\"https:\/\/www.kosekschweiz.ch\/download_file\/view\/194\/434\" target=\"_blank\" rel=\"noopener noreferrer\">D\u00e9finition, crit\u00e8res et questionnaire pour la d\u00e9signation en tant que Centre Associ\u00e9<\/a>\u00a0(en anglais)<\/li>\n<li><a href=\"https:\/\/www.kosekschweiz.ch\/download_file\/view\/195\/434\" target=\"_blank\" rel=\"noopener noreferrer\">Documentation utile pour l&rsquo;\u00e9laboration du dossier pour Centre Associ\u00e9<\/a>\u00a0(en fran\u00e7ais et allemand dans le m\u00eame document)<\/li>\n<li><a href=\"https:\/\/www.kosekschweiz.ch\/download_file\/view\/193\/434\" target=\"_blank\" rel=\"noopener noreferrer\">D\u00e9finition, crit\u00e8res et questionnaires pour la d\u00e9signation en tant que Structure de prise en charge<\/a>\u00a0(en anglais)<\/li>\n<li><a href=\"https:\/\/www.kosekschweiz.ch\/download_file\/view\/196\/434\" target=\"_blank\" rel=\"noopener noreferrer\">Documentation utile pour l&rsquo;\u00e9laboration du dossier pour Structure de prise en charge<\/a>\u00a0(en fran\u00e7ais et allemand dans le m\u00eame document)<\/li>\n<li><a href=\"https:\/\/www.kosekschweiz.ch\/download_file\/view\/173\/434\" target=\"_blank\" rel=\"noopener noreferrer\">Liste des maladies du groupe \u00ab\u00a0Maladies m\u00e9taboliques rares\u00a0\u00bb<\/a>\u00a0(en anglais)<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Dans le cadre de ce projet pilote, le Groupe de travail suisse pour les erreurs inn\u00e9es du m\u00e9tabolisme (SGIEM) et la kosek ont activement collabor\u00e9 \u00e0 la mise en place [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":362,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"ocean_post_layout":"","ocean_both_sidebars_style":"","ocean_both_sidebars_content_width":0,"ocean_both_sidebars_sidebars_width":0,"ocean_sidebar":"","ocean_second_sidebar":"","ocean_disable_margins":"enable","ocean_add_body_class":"","ocean_shortcode_before_top_bar":"","ocean_shortcode_after_top_bar":"","ocean_shortcode_before_header":"","ocean_shortcode_after_header":"","ocean_has_shortcode":"","ocean_shortcode_after_title":"","ocean_shortcode_before_footer_widgets":"","ocean_shortcode_after_footer_widgets":"","ocean_shortcode_before_footer_bottom":"","ocean_shortcode_after_footer_bottom":"","ocean_display_top_bar":"default","ocean_display_header":"default","ocean_header_style":"","ocean_center_header_left_menu":"","ocean_custom_header_template":"","ocean_custom_logo":0,"ocean_custom_retina_logo":0,"ocean_custom_logo_max_width":0,"ocean_custom_logo_tablet_max_width":0,"ocean_custom_logo_mobile_max_width":0,"ocean_custom_logo_max_height":0,"ocean_custom_logo_tablet_max_height":0,"ocean_custom_logo_mobile_max_height":0,"ocean_header_custom_menu":"","ocean_menu_typo_font_family":"","ocean_menu_typo_font_subset":"","ocean_menu_typo_font_size":0,"ocean_menu_typo_font_size_tablet":0,"ocean_menu_typo_font_size_mobile":0,"ocean_menu_typo_font_size_unit":"px","ocean_menu_typo_font_weight":"","ocean_menu_typo_font_weight_tablet":"","ocean_menu_typo_font_weight_mobile":"","ocean_menu_typo_transform":"","ocean_menu_typo_transform_tablet":"","ocean_menu_typo_transform_mobile":"","ocean_menu_typo_line_height":0,"ocean_menu_typo_line_height_tablet":0,"ocean_menu_typo_line_height_mobile":0,"ocean_menu_typo_line_height_unit":"","ocean_menu_typo_spacing":0,"ocean_menu_typo_spacing_tablet":0,"ocean_menu_typo_spacing_mobile":0,"ocean_menu_typo_spacing_unit":"","ocean_menu_link_color":"","ocean_menu_link_color_hover":"","ocean_menu_link_color_active":"","ocean_menu_link_background":"","ocean_menu_link_hover_background":"","ocean_menu_link_active_background":"","ocean_menu_social_links_bg":"","ocean_menu_social_hover_links_bg":"","ocean_menu_social_links_color":"","ocean_menu_social_hover_links_color":"","ocean_disable_title":"default","ocean_disable_heading":"default","ocean_post_title":"","ocean_post_subheading":"","ocean_post_title_style":"","ocean_post_title_background_color":"","ocean_post_title_background":0,"ocean_post_title_bg_image_position":"","ocean_post_title_bg_image_attachment":"","ocean_post_title_bg_image_repeat":"","ocean_post_title_bg_image_size":"","ocean_post_title_height":0,"ocean_post_title_bg_overlay":0.5,"ocean_post_title_bg_overlay_color":"","ocean_disable_breadcrumbs":"default","ocean_breadcrumbs_color":"","ocean_breadcrumbs_separator_color":"","ocean_breadcrumbs_links_color":"","ocean_breadcrumbs_links_hover_color":"","ocean_display_footer_widgets":"default","ocean_display_footer_bottom":"default","ocean_custom_footer_template":"","footnotes":""},"class_list":["post-1868","page","type-page","status-publish","hentry","entry"],"_links":{"self":[{"href":"https:\/\/dev.inbornerrors.ch\/fr\/wp-json\/wp\/v2\/pages\/1868","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dev.inbornerrors.ch\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/dev.inbornerrors.ch\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/dev.inbornerrors.ch\/fr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/dev.inbornerrors.ch\/fr\/wp-json\/wp\/v2\/comments?post=1868"}],"version-history":[{"count":7,"href":"https:\/\/dev.inbornerrors.ch\/fr\/wp-json\/wp\/v2\/pages\/1868\/revisions"}],"predecessor-version":[{"id":2518,"href":"https:\/\/dev.inbornerrors.ch\/fr\/wp-json\/wp\/v2\/pages\/1868\/revisions\/2518"}],"up":[{"embeddable":true,"href":"https:\/\/dev.inbornerrors.ch\/fr\/wp-json\/wp\/v2\/pages\/362"}],"wp:attachment":[{"href":"https:\/\/dev.inbornerrors.ch\/fr\/wp-json\/wp\/v2\/media?parent=1868"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}